More than 100,000 Americans are living with Sickle Cell Disease. The impact of this hereditary disorder reaches beyond those individuals to their families, friends, and communities. As a community organization we at Citizens for Quality Sickle Cell Care, Inc. work tirelessly to ensure that people with Sickle Cell Disease get their voices heard in all aspects of care. We want our consumers to be able to proclaim "Now We
Have A Voice!".
Our voices have been heard when our efforts to set up comprehensive sickle cell treatment centers in Connecticut yielded two children's centers. One center is located at Connecticut Children's Medical Center and the other at Yale New Haven Hospital. In November 2009 under the leadership of Dr. Biree Andemariam Connecticut now has an adult treatment center located in the Comprehensive Cancer Center in Uconn Health center. The transitional function, a collaboration with the Connecticut Children’s Medical Center, is just part of it. Andemariam works with nurses and a social worker to see sickle cell patients in the Neag Comprehensive Cancer Center, and on Tuesdays, she’s joined by a case worker and a patient care navigator from the New Britain group Citizens for Quality Sickle Cell Care
At present, our voices are focused on increasing opportunities for trait counseling and screening in our community, ensuring all individuals with SCD receive coordinated care, and working with emergency departments throughout Connecticut to develop exemplary pathways to care for all individuals with SCD. Join us as we continue to communicate, coordinate and collaborate for improved health outcomes. "Now We Have A Voice!"
The SCDAA 2011 Kermit B. Nash Academic Scholarship Competition is underway. Any graduating high school seniors that have sickle cell disease please consider applying for the scholarship. The deadline for submission is on Friday May 20, 2011.
See the link below for SCDAA’s new criteria and application.
Citizens for Quality Sickle Cell Care
The 9th Annual Fundraising Dinner
***SAVE THE DATE***
Date: Friday, June 3, 2011 Time: 6:00 P.M.
Location: Central Connecticut State University
1615 Stanley Street
New Britain, CT. 06050
Memorial Hall - Constitution Room
Keynote Speaker: retired Health Commissioner,
There will be a silent auction, vendors, and a guest appearance by
Master of Ceremony: Stanley McCauley
Price $40 for adults (children under 12 yrs free)
$25 for students with valid I.D.
Citizens for Quality Sickle Cell Care’s mission is…."To ensure the availability and accessibility of quality and comprehensive medical care and support services for children and adults in Northern Connecticut with Sickle Cell Disease and other related disorders."
For tickets and more information call
By Sodexho, Center for Africana Studies, CCSU