How We Use Our Voice!
Our organization is made up of volunteers from Connecticut. Our group is diverse and made up of parents, families and friends of people living with Sickle Cell Disease, educators, and members of the clergy who are interested in providing quality care and support for children and adults with Sickle Cell Disease and related disorders.
Services We Offer:
• Educational materials
• In-service an Training
• Individual/Group Support
More than 80,000 Americans are living with Sickle Cell Disease. The impact of this hereditary disorder reaches beyond those individuals to their families, friends, and communities. As a community organization we at Citizens for Quality Sickle Cell Care, Inc. work tirelessly to ensure that people with Sickle Cell Disease get their voices heard in all aspects of care. We want our consumers to be able to proclaim "Now We Have A Voice!"
Our voices have been heard when our efforts to set up comprehensive sickle cell treatment centers in Connecticut yielded two children's centers. One center is located at Connecticut Children's Medical Center and the other at Yale New Haven Hospital. Our voices still push for adult treatment centers that have yet to be realized in Connecticut.
At present, our voices are focused on increasing opportunities for trait counseling and screening in our community, ensuring all individuals with SCD receive coordinated care, and working with emergency departments throughout Connecticut to develop exemplary pathways to care for all individuals with SCD. Join us as we continue to communicate, coordinate and collaborate for improved health outcomes. "Now We Have A Voice!".